Tuesday, November 30, 2010

Post-Turkey Day Update

Happy belated Thanksgiving to all, which includes my Irish family - I ate for you as well! I hope everyone had a peaceful and happy holiday.

I don't have any news that is make or break. I won't have a scan done until the end of January/beginning of February. If they did a scan now the Dr's wouldn't really be able to differentiate between what is inflammation, tumor, dead tumor, or scar tissue. So we wait. We wait until the inflammation and all settles down. I go to Robert Wood Johnson (rwj) hospital every 2 weeks for blood work, and follow up stuffthen I'll go once a month then every 2 etc. I also of course, continue to see Dr. Moriarty every two weeks so I can ask him if I can be done with cancer now, because it is like really, really, totally, like totally, totally lame...poor guy - I always ask impossible questions.

Before and up until Thanksgiving I was feeling pretty crappy. I felt like I had the flu, with muscle-aches, headaches, and a raging fever (but I didn't have a fever). Dr. M. said it was radiation poisoning, which almost sounds redundant to me. I thought he was kidding. I asked him if he was, but he said it is actually a real thing. However thanks to Fran who was home from wed. before Thanksgiving until the Monday and I was able to get a lot of rest (thank you dear) and I have been feeling much better. It really can't compare to being on chemo but I just want to put the info out there for anyone interested.

I am kind of glad that we have to wait for scans. Dr. M. says he isn't putting me back on chemo until we know what the deal is and so in the interim, we are having what I would call a "quiet section." I say quiet section because as my fellow cancer com padres know, or anyone who is close to cancer knows, your life kind of moves in 3 months increments. That's how it feels to me anyway. So right now we are having a quiet 3 month section. I know that the tumor is dying (supposed to be anyway) so there is not much more I can do right now but let that happen.

Thank you everyone for all your support, prayers, emails, messages, hugs, smiles, friendship and love. I am so humbled and awed that after almost 4 years the support and love that our family has received is as strong if not stronger than ever. I genuinely find myself taken aback at how much people do for us and continue to do for our family many who I don't even know. People just give of themselves wanting nothing in return - amazing. For my kids, my husband and myself I say "thank you.

People are amazing, and you all really humble me to be a better friend, a better person because of all of your support. I hope I can support and love people the way myself and my family have been loved, and supported.

Again, thank you and let's keep praying for each other eh?


Tuesday, November 2, 2010

Still Glowing

So as Fran mentioned the sir-sphere procedure went well. Dr. Nosher told me that the scan they took immediately following the procedure showed the intense uptake of the spheres in the tumor. That's great news. Now we just sit and wait.

I am doing fine. Could feel better could feel worse. I came home from Chris and Kate's a bit early cause I just couldn't take being away from the kids any longer, though it was hard to leave a place where you are waited on hand and foot and with so much love. It was also great to hang out with Chris and Kate which is something I don't get to do very often. Thank you guys (and Steve and Gio) for sharing your home and taking such good care of me.

In the interest of any other readers who might be getting this procedure, or are just curious, the recovery isn't that bad. Though I have decided today that I hate physical recovery in all forms it's annoying and always takes longer than you think and so on, and so on, complain, complain, complain. The biggest thing is I have very low energy and no appetite. I feel kind of nauseous but I think that's because of my appetite being off.

Anyway that's about it. Fran took great care of the kids, doing all their school stuff and keeping them happy and comforted. Thanks to all our family and friends for your support. We really appreciate it and it helps us more than you can ever know.