Karen's having a very tough time. On Saturday night she cut back on the morphine as the pain from the surgery had become more manageable. Soon after going to bed she began having uncontrollable muscle spasms in her legs and body, apparently a withdrawal symptom from the narcotics. This didn't quit and the thrashing kept her up until 3AM.
The following day her incision began opening up and "weeping". This resulted in a trip to the emergency room at Overlook. What a difference from LIJ!! The incision is otherwise healing well and this opening is nothing to worry about. Unfortunately each night since then has resulted in more and more jitters and less and less sleep. Last night she was up until 6AM.
The kids are sick too at the moment which isn't helping either of us get any sleep.
With some care Karen's wound should close up soon. Her mobility is slowly returning, still not very steady but able to get around. Picking up Ethan is way way out of the question.
Today we met with Dr Moriarty at Overlook. He was a sight for sore eyes and despite the circumstances, it was re-assuring to be back meeting with him.
He and Dr Ravikumar have spoken and essentially he agrees with everything that was done during the surgery. Unfortunately the detection of additional tumors in Karen's left lobe alters her prognosis for the worse. This is something we already knew but Moriarty confirmed. These have been ablated now so essentially Karen is in a better position today than she was before surgery.
We will have another consultation with Moriarty in two weeks. After that Karen'll have a repeat CT Scan to see where things are (hopefully clean scans) and we'll decide on a plan to move forward. Some potential options are more/new chemo or SIR Spheres which I'll discuss in another post.
We wish everyone a joyous and peaceful Christmas season.
P.S. Happy birthday to our amazing son Ethan who turned 2yrs old last Friday, Dec 7th.